Babak & Daniel Darvish

Doctors in search of cure for genetic disease

Two doctors in Los Angeles suffer from a disease called HIBM which is a genetic disease affecting the Jewish Iranian community. They are doing research on finding a cure. They are interviewed by Karmel Melamed about the disease and about their work. Here's their website for HIBM where information can be found about the disease and about the project.

from Ghormeh Sabzi
18-Dec-2009
Iranians of the Day | Photos
Balatarin
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Farnoosh

HIBM

by Farnoosh on Fri Dec 18, 2009 03:51 PM PST

From the website mentioned above: //www.hibm.org/arm/about_hibm:about_hibm 

"HIBM (Hereditary Inclusion Body Myopathies) are a group of rare/orphan
genetic disorders. HIBM causes progressive muscle wasting and weakness
that begins in young adulthood and can lead to very severe disability
within 10 - 20 years. Besides clusters of patients amongst people of
Middle Eastern, Jewish, or Japanese heritage, patients can be found in
every corner of the world. HIBM has been identified in people Asian
(Japanese, Korean, Chinese and others), European, South American,
African, and Middle Eastern (Muslim, Palestinian, Jewish, Iranian)
origins."

 

I hope the two doctors find a cure for themselves and for other people with this disease. Thank you for the good work.


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jasonrobardas

what doesm HIBM stand for?

by jasonrobardas on Fri Dec 18, 2009 03:16 PM PST

 and what are the statistics regarding the occurance of this muscular disease , anyone knows?


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