Free at last

Free at last
by Jahanshah Javid
08-Nov-2008
 

The first time I saw my sister Jamie (Jamileh) was I think in Los Angeles in 1975, when I was visiting the U.S. with my father. She was my mother's first child from her first marriage. Jamie and a few other mentally-disabled "children" were being taken care of by a family paid by the state of California.

Jamie was thrilled to see us. She was sitting on a chair, hands on her knees, laughing and smiling like a sweet little girl. She was in her early 20s.

***

In 1992, my mother had gone through her fourth (fifth?) divorce and was living alone in Florida. She took Jamie out of state care and brought her home. But after a couple of months it became obvious that living with Jamie was easier said than done. Even with all the numbing pills, she was a challenge. She may have had the mental capacity of an eight-year-old, but in many ways she was an adult whose needs and wishes were difficult to control. She needed professional supervision. Jamie had to go back into state care in California.

On her way to California, Jamie stayed with me for a few days in Albuquerque, where I was a student at the University of New Mexico. Every morning she would dress up, purse in hand, ready to go out. It was not easy saying no to her, and I didn't want to. She was going to be with me for a short time so I thought why not let her do what she likes? We would get into my Volkswagen beetle and drive to the mall. Oh I can still see the excitement in her face, craving a Big Mac with fries and a Coke! That twinkle in her eyes when she saw a shiny purse or dress or shoe behind a store window!

***

I used to equate mental illness with insanity. But Jamie was far from it. She understood. She comprehended. I could see it in her eyes and gestures; she was a smart girl. A trapped little girl.

***

Jamie passed away Friday after complications from a severe cold. She's free at last.

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more from Jahanshah Javid
 
Anonymous Observer

Condolences

by Anonymous Observer on

Very sorry for your loss.   You have done the right thing by bringing her story to light.  There are still issues with insurance companies' coverage of care for mental disorders in the United States, and as a result, many individuals suffering from those illnesses cannot get the proper care that they require.  The more these personal stories are told, the more the public debate about the issue can be effected. 

We have come a long way in understanding the underlying medical causes for mental disorders, but still a lot more needs to be done to address this very important public health issue. 

 


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we all go

by armita (not verified) on

sorry for your loss, but always remember that she will live in your heart. and one day you will be with her. we are all going, but we all get are tickets at a different time.

take care.


talieshah

Sorry for your loss

by talieshah on

My condolences to you and your family.  May she rest in peace.

Ghorbanat, Talieh


ahvazi

Tasliat

by ahvazi on

Roohesh Shaad.


KB

Aghayeh Javid, Kamaleh Tasliat

by KB on

Having a mentally disabled person in the family has a profound effect on the rest of the family , I know, I speak from experience.

I am truly sorry for your loss and I know exactly what you mean by “free at last”, she will rest in peace.


sima

All the world's a stage

by sima on

I just saw this. I'm so sorry. But I have a theory about the hereafter. I think it's one big cast party to which people go after the performance of their particular roles are ended. They leave the stage, take off the costume, wipe off the make up and join the others who made it to the party before them. Grab a cold beer, sit back and join post-performance banter: "Man, you did a fine job playing an asshole... and you, what was all that Mary-mother-of-God, holier-than-thou face about?" -- and yet another: "You sure were convincing playing the part of such ignorance and stupidity. It took all I could muster to play against that."

Now Jamie can put her feet up and laugh with the rest.


Kaveh Nouraee

Jahanshah

by Kaveh Nouraee on

Please accept my deepest condolences on your loss.

May your sister rest in peace.


ThePope

tasleeyat...

by ThePope on

Ghameh aakhar baasheh,,, Baghaayeh omreh shomaa va khaanevaadeh...

Roohesh shaad.

"On her way to California, Jamie stayed with me for a few days in
Albuquerque, where I was a student at the University of New Mexico.
Every morning she would dress up, purse in hand, ready to go out. It
was not easy saying no to her, and I didn't want to. She was going to
be with me for a short time so I thought why not let her do what she
likes? We would get into my Volkswagen beetle and drive to the mall. Oh
I can still see the excitement in her face, craving a Big Mac with
fries and a Coke! That twinkle in her eyes when she saw a shiny purse
or dress or shoe behind a store window!
"

Love can never possess. Love is giving freedom to the other. Love is an unconditional gift, it's not a bargain.

There's a special kind of freedom sisters enjoy. Freedom to share
innermost thoughts, to ask a "favor", to show their true feelings. The
freedom to simply be themselves. -

 


jamshid

Condolences

by jamshid on

Sorry to hear about your loss. My condolences to you and family.


I Have a Crush on Alex Trebek

I want to commend you and your family: Mental Illness

by I Have a Crush on Alex Trebek on

I happen to know an Iranian woman who was abandoned by her family. It is heartbreaking what they have done to her, out of frustration I'm sure. But thank you for sharing your story. I hope others see the importance of supporting mentally ill family members. I'm sorry for your loss. 


Arash Monzavi-Kia

JJ, thanks for sharing ...

by Arash Monzavi-Kia on

JJ, thanks for sharing your emotions on the loss of a family member and your firsthand insight into mental illness. May she rest in peace, and may you always stay courageous and open.

Arash M-K


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Condolences

by Killjoy (not verified) on

I'm sorry for your loss!


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Sister of Mercy

by Leonard Cohen (not verified) on

Oh the sister of mercy is already parted and gone
She brought you her comfort and maybe she brought you her song.
If your life is a leaf that the seasons tear off and condemn
She will bind you with love that is graceful and green as a stem.

www.youtube.com/watch?v=oBFQg7P5YKw


jimzbund

My condolences JJ

by jimzbund on

May God bless her soul and give comfort to her family. We are all in transit in this world and sooner or later will join the dear departed  ones. The only thing remaing will be a good name:

Saa'dia mardeh nekoo naam namirad hargez,

Mordeh aanast keh naamash beh nekooee nabarand.

Bund, Jimz Bund


Mola Nasredeen

Jahanshah, My condolences for your sisters's passing

by Mola Nasredeen on

Your sister's soul lives on. My neihbor's daughter is for one. I dedidcate this song performed by John Prine to the memory of Jamie. //www.youtube.com/watch?v=PjAYLYG9Ii0


asghar62

Jahanshah e aziz tasliat

by asghar62 on

Dear JJ,

I'm sorry for your loss.


Majid

JJJ

by Majid on

JJ jaan, Please accept our condolences and sympathies.

T, Majid, Ray and Bobby


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Free At Last

by Kuush (not verified) on

Here is a poem by a great poet who suffered from mental illness for a good part of his life:

Hoch auf strebte mein geist, aber die Liebe zog
Schon ihn nieder; das Laid beugt ihn gewaltiger;
So durchlauf ich des Lebens
Bogen und kehre, woher ich kam.

High my spirit aspired truly, yet, love
brought it low; and grief bows it down still lower.
So I follow the arc of life
and return to whence I came.

(Lebenslauf/The Course of Life/Holderlin)
Tasliat.


Azarin Sadegh

It's so sad...

by Azarin Sadegh on

It's so sad that some of us can only bond and connect together through one’s death. Sometimes I wonder whether it is the sign of empathy or the fear of dying?

Azarin

Voila another great music by Satie...but I warn you, it's very sad:

//www.youtube.com/watch?v=r_w_lckqz8A&feature=related

 


nitemustfall

JJ aziz ...

by nitemustfall on

We share your sorrow. Losing a love one is always hard, but remember we are all in-line for that destiny.

BeninTx


Hajminator

‫جهانشاه عزیز،

Hajminator


اين مصيبت را بر جنابعال‫ی و بازماندگان محترم تسليت ‫می گوييم.


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Peace with you.

by PMK (not verified) on

My brother JJ.

Peace with you.

We will all be free at last.

PMK


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Jamie,

by Stranger (not verified) on

Jamie, you life was precious. You’ll be remembered always.


Masoud Kazemzadeh

tasliyat

by Masoud Kazemzadeh on

JJ jaan,

My deepest sympathies and condolences.

Masoud


persian westender

Please accept my

by persian westender on

Please accept my condolences.

 


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"She's free at last"

by Anonymous77 (not verified) on

If it's any consolation, I expect she was freeer than a lot of us. Getting excited about small outings, may seem childish to some, but are a sign of freedom to enjoy with great awareness, every moment.

We are mostly all "mentally ill". According to Foucault there is no such thing anyway.
We come in all sorts of shapes and sizes and mostly there is no such thing as a norm in reality. People just tend to pretend to conform to survive.

She didn't have to and didn't bother. Free.

Sounds like she didn't do anyone any harm and lived a giggly life.

Cheers.


ebi amirhosseini

JJ Aziz, Sorry for your loss

by ebi amirhosseini on

   چرا از مرگ می ترسید   

**************** 

چرا از مرگ می ترسید
چرزا زین خواب جان آرام شیرین روی گردانید
چرا آغوش گرم مرگ را افسانه می دانید
مپندارید بوم نا امیدی باز
به بام خاطر من می کند پرواز
مپندارید جام جانم از اندوه لبریز است
مگویید این سخن تلخ و غم انگیز است
مگر می این چراغ بزم جان مستی نمی آرد
 مگر افیون افسونکار
نهال بیخودی را در زمین جان نمی کارد
مگر این می پرستی ها و مستی ها
 برای یک نفس آسودگی از رنج هستی نیست
مگر دنبال آرامش نمی گردید
چرا از مرگ می ترسید
کجا آرامشی از مرگ خوشتر کس تواند دید
می و افیون فریبی تیزبال و تند پروازند
 اگر درمان اندوهند
خماری جانگزا دارند
نمی بخشند جان خسته را آرامش جاوید
خوش آن مستی که هوشیاری نمی بیند
چرا از مرگ می ترسید
چرا آغوش گرم مرگ را افسانه می دانید
بهشت جاودان آن جاست
جهان آنجا و جان آنجاست
گران خواب ابد در بستر گلوی مرگ مهربان آنجاست
 سکوت جاودانی پاسدار شهر خاموشی است
همه ذرات هستی محو در رویای بی رنگ فراموشی است
تنه فریادی نه آهنگی نه آوایی
نه دیروزی نه امروزی نه فردایی
جهان آرام و جان آرام
زمان در خواب بی فرجام
خوش آن خوابی که بیداری نمی بیند
سر از بالین اندوه گران خویش بردارید
در این دوران که آزادگی نام و نشانی نیست
در این دوران که هر جا هر که را زر در ترازو زور در بازوست
جهان را دست این ننامردم صدرنگ بسپارید
که کام از یکدیگر گیرند و خون یکدیگر ریزند
درین غوغا فرومانند و غوغا ها برانگیزند
سر از بالین اندوه گران خویش بردارید
 همه بر آستان مرگ راحت سر فرود آرید
چرا آغوش گرم مرگ را فاسانه می دانید
چرا زین خواب جان آرام شیرین روی گردانید
چرا از مرگ می ترسید
 

فریدون مشیری

 

 


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JJ

by kurdish Warrior (not verified) on

My deepest condolences!


Orang Gholikhani

Tasliat

by Orang Gholikhani on

I'd like share your pain. As you said she is at last Free. I'm sure she continues to take care of you above rainy clouds.


Jahanshah Javid

Unity at last!

by Jahanshah Javid on

Thank you for all your considerate and loving messages.

I couldn't resist noticing that friend and foe -- so to speak -- came together to share their heartfelt feelings.

Take a look at each other, especially the one(s) you can't stand. You are all human, the same, only with different political, religious, social... views. Acknowledge that the person above or below you has the right to exist with his/her beliefs just as much as you do.

Now resume kicking and screaming!

I'm just kidding. Joking around is my way of dealing with tragedy.